The Sussex & Kent ME/CFS Society is the registered charity that informs, supports, and represents many of the nearly 8,000 adults and children affected by ME/CFS across the extended Sussex and Kent region. We also have people affected by Fibromyalgia and Long Covid amongst our membership. Our members are affected to differing degrees with a good number being virtually house-bound and in need of care.
The role of the Sussex & Kent ME/CFS Society remains profoundly important informing, supporting and representing patients. Services include help-lines, newsletters, meetings, Egroup, library and special interest groups etc. The charity keeps in contact with support agencies and medical professionals and has eminent doctors as advisers. We also enjoy the support of a number of patrons including MPs that work in the interests of ME/CFS patients.
Our charity is a forward looking and open minded organisation. One of our main aims is to see those affected by ME/CFS lead the best lives possible. We aim to share reliable information to enable people to make decisions about how best their health and lives could be improved.