The Haemophilia Society

The Haemophilia Society (THS) is the only UK-wide charity and free membership organisation for everyone affected by a bleeding disorder. We have over 5,000 members.

One in 2,000 men, women and children in the UK have a diagnosed bleeding disorder, which are a group of conditions, including haemophilia and von Willebrand disorder, that result when the blood cannot clot properly. As many as a third of bleeding disorder diagnoses have no known family history and can be the result of a random gene mutation. This means a bleeding disorder diagnosis can come completely out of the blue.

Life after diagnosis may start out hard, but we learn by doing, making mistakes, asking questions and surrounding ourselves with people who understand. Then, slowly, it just becomes life again.

At THS we want to empower everyone affected by a bleeding disorder to live life to the full, whatever stage you are at. We offer free member events, a local group network and online communities to share advice and experiences, as well as the latest news and access to specialist resources.